Documents :: ELA Registry

Project : Registry of patients with Amyotrophic Lateral Sclerosis (ALS) and other motor neuron diseases to assess the effect, quality and usefulness of nutritional support in Castilla y León Health Hospitals (SACYL).

Objectives of the study : To assess the nutritional status at the beginning of the follow-up, the evolution of the nutritional situation and the influence of the different nutritional therapeutic measures on the evolution of the disease and its complications in patients with disease of motor neuron in Castilla y León.

Principal investigator: Juan José López Gómez

Collaborating researchers: María D. Ballesteros Pomar, Beatriz Torres Torres, Begoña Pintor de la Maza, Emilia Gómez Hoyos, Ana Ortolá Buigues, Cristina Robles Lazaro, Sara García Arias, José María Palacio Mures, Luis Cuéllar Olmedo, Cristina Abreu Padín, Antonio López Guzmán, Irene Sanz Gallego, Daniel A. De Luis Román

Collaborating Centers:

1.     Hospital Clínico Universitario de Valladolid
2.     Complejo Asistencial Universitario de León
3.     Hospital de El Bierzo
4.     Hospital Universitario Rio Hortega
5.     Complejo Asistencial de Segovia
6.     Complejo Asistencia de Ávila
7.     Complejo Asistencial de Zamora

 

 Protocolo CEIm ELA

 Consent without ELA samples

 Base Ela 2020 variables and tools

 ELA 2020 Base Instructions

 ALSFRS

 Subjective Global Assessment HCUV